24 January 2018

21 Things You Shouldn't Say To A Person With CF

This is my first CF-related post in a long time! This post doesn't need too much of an introduction.
In my life, trying to explain what Cystic Fibrosis is to someone I barely know is hard enough, but when they say one of these following things to you, it makes you want to give up and walk away, only you can't, at the end of the day you don't want them making assumptions or just guessing what it is. Here are some of things you shouldn't say to someone who has CF like myself:

1. You don't look ill - I know mate, but I am

2. Is it contagious? - No it isn't, so kindly walk away or I'll cough all over you.

3. Cystic Fibrosis? That's to do with the lungs isn't it? - It's more than that unfortunately.

4. That's a nasty cough you got! - Can't help it mate, it's this thing called CF that makes me cough.

5. You're so lucky, you get to eat whatever you want! - Yeah it's a good thing until you realise you haven't gained weight.

6. So when you get a lung transplant, you'll be cured? - Nope, if only that was the answer.

7. *Starts coughing* Stranger: "You need to quit smoking" - I got Cystic Fibrosis, do one!

8. Have you tried herbal remedies? - I wouldn't try that stuff even if I was healthy.

9. I feel sorry for you! - I don't need your sympathy, I just get on with it!

10. I know how you feel, I have asthma. - Seriously walk away from me and take your Ventolin pump with you!

11. You're always tired! - Try coughing near on 18 hours a day, you'd be tired too!

12. You should be used to needles by nowYou can NEVER get used to needles.

13. I know someone who's got that! - That doesn't mean you know what it's like to live with it!

14. You don't look disabled - Not all disabilities are visible!

15. I don't like hospitals - Shame, I practically live in one!

16. It must be nice not working/going to school - Do you think I want to stay at home listening to my lungs drown in phlegm?!

17. I wish I could nap - It's not that we want to, our body needs us to.

18. You take a lot of medication! - Goodness me, do I?!

19. It could be worse - How?

20. I saw someone who had that on Holby City! - They probably didn't portray it very well.

21. You look ok! - It takes a lot of hard work to look ok, makeup is my life saver.
Lucy
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