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18 November 2019

A Little Life Update

I haven't written a life update in, well, yonks. I thought it was the right time to do so after a tumultuous couple of weeks.




It all started on a Thursday evening about 11 days back. I received two sets of heartbreaking news in the space of a few hours. Two of my friends passed away. As you can imagine, I was inconsolable, the news just broke me. To lose one friend is heartbreaking enough, but to lose two in a short space of time was beyond devastating.



The first few days afterwards, I really struggled. Emotionally, I was a complete wreck. I couldn't stop crying, I lost all motivation to do anything and tried to keep myself so busy that I wouldn't let myself grieve. All those days were just a blur. The only thing I can remember was driving to work on the Saturday and just crying all the way there, I really couldn't face customers and people in general. I am only just about coming to terms with what's happened.




I just kept thinking how bloody cruel life can be. I can't comprehend what my friends went through or what was going through their minds before they died. One died from cancer and one died from CF. Both illnesses are just as evil as each other.




Just before that Thursday evening, one of my work colleagues had someone have a pop at her over being 10p extra for a can of Coke. If only I had known what had happened at that particular moment, that customer would have it both barrels from me for whining about something as insignificant as ten pence. There are people out there dying from illnesses, starvation or are in poverty or homeless and she's whinging about 10p! Honestly, some people. Obviously I shouldn't judge too much as I don't know what is going on in her life, but you know, you don't think of that at the time.



When things like this happen, I know it's a cliché, but it really does put things into perspective. We should always count our blessings, however small they are. If you're sulking about something like you have to put the bins out in the rain or you have to do the housework, think of it like this, it could be a hell lot worse.




Going onto another topic now, I'm getting teary again. I did have a little bit of good news. The CF wonder drug, Orkambi, which people with CF have been fighting for it to be made available on the NHS, has finally made available in all four nations. Wales came last (shock horror) so the wait on my side of the water was a little worrying. It had got to a point where I thought it was never going to happen. I'm so excited that CFer's can finally have access to the drug in a matter of weeks. Me? I honestly don't know if I'm eligible for it yet! I'm sure the doctors will talk about it with me when I'm next in clinic. In the meantime though, I have a little wait myself to see if I'm eligible to take it or not!



All I can say is that I hope this is the start of a brighter future, not just for myself but all CFer's out there. I'm also thinking about all those people with CF that aren't able to take Orkambi due to their gene mutations. They're going to still be in the waiting game for life changing drugs, let's think about them also.




To sum up, life has been a good old mixture of emotions lately and I hope things steady themselves out over the next few weeks, especially with Christmas coming!







Lucy

22 comments:

  1. I am so sorry to hear about your friends. Also, whilst I often moan about the increased price of a Freddo, I would never dream of taking that out on someone - it's got nothing to do with them! And at the end of the day, it is just a can of coke! If you don't want to pay the 10p extra, don't get it!

    Hope you will feel better, and know at least your friends are no longer suffering.

    Ellyn x | Life Of A Beauty Nerd

    Ellyn x

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    1. Thank you Ellyn, I know right?! Some people are just so irritating like that! x

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  2. I'm so sorry to hear about your loss Lucy, and working in hospitality too I can understand how ridiculous people can be I had someone scream at me over an undisputed hire fee the other day and try to get the money back from me because she had dealt with a different manager and I happened to be working the shift!

    I hope you have time to heal and always here if you need a chat x

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    1. Thank you Kayleigh, some people are just so rude and will always take their anger out on the wrong person! x

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  3. I'm so sorry for your loss, to lose two friends in one period of time is so unlikely and such a horrible thing to have to deal with. I totally agree that things like this put things into perspective and shorten your tolerance for listening to others whining about such insignificant things. I hope you're doing well and it's great news about the drug!
    Soph - https://sophhearts.com x

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    1. Thank you Soph, when things like this happen, it really makes you count your blessings, yes the news about Orkambi is wonderful! x

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  4. I'm so sorry to have read about your loss. I can't imagine how you've even managed to get through those days. Sending you all the well wishes. Great news about the drug x
    Amber | www.amberatlanta.blogspot.co.uk

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    1. Thank you Amber, yes it was difficult but I'm doing ok, yes it's amazing news! x

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  5. That is truly heartbreaking news - I am so deeply sorry for your loss. I can't imagine how you are feeling but you're being so strong and positive. It really does put things into perspective. Great news about the drug too. xx

    Jessie | jessie-ann.co.uk

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    1. Thank you Jessie, that means a lot lovely xx

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  6. so sorry to hear about the loss of two of your friends, I lost my sister very suddenly & unexpectedly back in August, so I can imagine what emotions you must be going through at the moment, it certainly does put life into perspective.

    Claire || www.clairejoanne.com

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    1. I'm so sorry to hear about your sister Claire, I can't imagine what you must be going through x

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  7. I’m so sorry to hear your loss, it’s heartbreaking! Hope you feel better soon emotionally and mentally!

    Ayse x

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  8. I am so truly sorry. One loss is terrible but two, I just can’t imagine.

    Take your time and be kind to yourself.

    Great news about the medication though.

    Sending love x x

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    1. Thank you lovely, that means a lot. Yes it's amazing news! xx

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  9. It's so brave of you to speak up about it so openly, we all experience loss at some point in our lives but it's very hard to know the right way to deal with it when it does happen. The fact that this is out there for everyone to read who may be going through something similar is a real accomplishment in itself. Sending you all my love today

    Lauren | saharasplash

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    1. Ah Lauren thank you so much, this really means so much to me, it was hard to write this but it needed to be done, I hope this post does help others also x

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  10. I'm so sorry about your loss Lucy, I can't even imagine what that must feel like. But stay strong and be kind to yourself! That's great news about the medication too, sending all my love x

    Evie x | www.eviejayne.co.uk

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    1. Thank you Evie, it is great news! It's a relief to a lot of the CF community! x

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  11. I'm so sorry, I can't even begin to imagine how horrible the last couple of weeks must have been for you. Life can be so cruel sometimes. It's awful to lose friends so young, regardless of how or why it happens. I hope you can get your hands on the wonder drug after your next appointment! x

    Sophie
    www.glowsteady.co.uk

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    1. Yeah it's been quite a difficult couple of weeks but I've come to terms with what's happened, yes I hope so too! x

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